Resources and Patient Support Organizations

My Health Can’t Wait

Established in 2020 as part of Our Race to Health Equity, the My Health Can’t Wait program was created to educate and inspire people, especially patients and caregivers within communities of color, to prioritize their health. Since then, the initiative’s momentum has grown, thanks to expanded outreach, tailored research, PSAs, pilot programs and wellness events throughout the country. My Health Can’t Wait is now focused on scaling up these efforts for an even larger impact — expanding community initiatives, building additional educational resources to support healthcare providers and patients, growing initiatives with current partners and kicking off collaborations in the name of better health.  https://www.myhealthcantwait.com/resources

ARDS Foundation

ARDS Foundation is a nonprofit organization dedicated to supporting patients and families faced with the horrific diagnosis of Acute Respiratory Distress Syndrome (ARDS). We are dedicated to increasing awareness about this little-known syndrome. We work diligently to offer educational materials to families and patients who find themselves faced with an ARDS diagnosis for themselves or a family member.
https://www.ardsglobal.org

Lupus and Allied Diseases Association, Inc.

Founded in 1978, the Lupus and Allied Diseases Association (LADA) is a national patient advocacy organization dedicated to enhancing quality of life by enlightening and empowering individuals impacted by lupus and allied diseases. It is our goal to improve access to care and quality of life by fostering collaboration among stakeholders, promoting unity in the community, and wielding the patient voice as a catalyst to advance innovative advocacy, education, awareness and biomedical research initiatives.
https://www.ladainc.org